DLANZ Media Watch: Disabled World Run by Downs Better Than ‘A World Without
A World without Downs looked sterile and scary. SS Disabled Women have their say. Disabled babies are not responsible for man made economic mismanagement. This is all too familiar with Maori here in Aotearoa or like Australia's real 1st People
INTROUCTION: Personality the Foundation of Collective Culture Waiata song Dandy Warhol’s ‘Bohemian Like You https://www.youtube.com/watch?v=ovUGFmF0MF4
21 March celebrated International Downs Syndrome Day and Television New Zealand TVNZ, ran an informative and controversial documentary “A World Without Downs Syndrome” ( by Sally Phillips, BBC2 UK) “Actress Sally Phillips plays on the sitcom Miranda and the Bridget Jones film franchise. But she is also mother to 12-year-old Olly, an ice-cream-loving Barcelona fan who is full of life and laughter. Olly also has Down’s syndrome, and Phillips’s new documentary was both an affectingly personal documentary and a study of medical ethics…,Her film was prompted by the fact that currently nine out of 10 mothers who receive a Down’s syndrome diagnosis during prenatal screening opt to terminate….. “Why does everybody behave like it’s a catastrophe?” asked Phillip” (A World without Down's Syndrome was a forceful addition to the debate: review by Gerard Donovan, The Telegraph)
The documentary showed an upside on the progress of the kids with Downs as they grow into adulthood, Sally made mention of these folks (men women and children), with their ‘learning disabilities’ being surpassed where people with Downs were in gainful employment, married and driving cars. But is she both the perfect person to give an account of Down’s syndrome and the worst possible person to present this documentary about the pros and cons of screening?
As Phillips herself says, this is “a film that asks the question – what kind of society do we want to live in?” The answer here is unequivocal from minute one: a society that cares about everyone, no matter what their chromosomal makeup. Who could disagree?
The Other Side….Families / Whanau...History Repeated?
There is a counter argument in The Guardian Sorry, Sally Phillips, but a woman should be able to know if her unborn baby has Down’s syndrome '' by Hadley Freeman https://www.theguardian.com/…/sally-phillips-woman-unborn-b… a good read too.
From The Guardian by Hadley Freeman “There has been an enormous amount of publicity for this documentary, with praise for Phillips’ clearly heartfelt intentions. The actor has an adorable young son, Olly, who has Down’s syndrome, and one of her aims are to provide a counterbalance to the almost entirely negative depiction of Down’s syndrome in both society and the media. For this, she should be loudly applauded. True, her wholly positive depiction of her life with a child with Down’s syndrome is as partial as the wholly negative ones, not least because her son is relatively high-functioning and Phillips and her husband are able to afford help. Still, as I said, it’s a much-needed corrective, and hats off to her”.
“But that is not all Phillips and her film is arguing for. Rather, the documentary was pegged to the imminent availability of non-invasive prenatal testing on the NHS, which is a safe and more accurate method of screening for Down’s syndrome than the form currently available, and with no risk of miscarriage. This, according to Phillips, is “sad, it’s just horrible, really”. Later, she describes herself as “really quite angry” about it….Phillips makes no bones that she is coming at this subject from a deeply personal perspective, one that is occasionally blurred with tears during her film.” Also it was reported in the Daily Mail Australia a Jane Fisher, herself interviewed,” “…told The Observer yesterday: ‘No one is casting aspersions on Sally’s son or trying to invalidate his right to be here (but) it is too problematic to have one individual representing that choice”
DLANZ hold to the Feminist philosophy that women are the ultimate authority of their own bodies and destinies. We support Women with and without disabilities, in their struggle for those rights, including child rearing. The safety of a Mother should always be Paramount, where information is important, all of it.
I was watching an item on Aljazeera and other media sites clearly indicating that while we condemn governments who set up harsh regimes forcing mums with upcoming disabled kids to terminate l DLANZ also condemn governments and or their agencies forcing mums to have disabled babies. The ‘Pro Life and Pro Choice’ discussions are only one aspect of social interactions of concern that span a whole range of people living with impairments like Downs. Those with Spina Bifida , Muscular Dystrophy Cerebral Palsy and other impairments are also having to combat our identification in other issues as like ‘assisted suicides’ and even mass killings, yet we all either have or had mothers and resent this being placed on our ‘peoples’,
“Two-thirds of the world’s women live in countries where abortion can be obtained for a variety of social, economic or personal reasons. In other nations it is allowed only in cases of rape, foetal abnormality or when a woman’s life is at risk: Yet El Salvador bans abortion in all circumstances and criminalizes women suspected of procuring one, along with those believed to have been complicit in the process. In some cases, suspects have been charged with murder. Even in cases of miscarriages, where this isn’t verified by a doctor these young and mainly poor women / girls sometimes are sent to do terms of imprisonment.
Poland has one of the harshest abortion laws in Europe. It is a crime to terminate a pregnancy in the eastern European country except in circumstances: like foetal abnormality, yet some doctors in Poland are refusing to reveal the full medical implications of pregnancies to expectant mothers in an attempt to limit abortions
Poland is a predominately Catholic by way of religion, yet the consideration of a ‘pro-life- is offset by determining a disabled baby as ‘unhealthy’, something disabled people have long argued as to ‘who’ is healthy or not, when it comes to comparing both able boded and disabled frames. You don’t see many in prison or with addictions as like those who suffer from issues as mental health and suicide, die to their impairment do you?.
On a global scale- President Donald Trump has massively expanded the ban on providing federal money to international family planning groups that perform abortions or provide abortion information to all organizations receiving U.S. global health assistance. This kind of moralistic behavior has serous consequences for those UN agencies working with women in developing and Third World countries, trying to lift the levels from poverty, low o r no education. NZ Family Planning has endorsed the IPPF (International Planned Parenthood Federation) who express the serious concern ““The money the US administration now wants to withdraw would have been spent on health care for some of the poorest and most vulnerable women and girls in the world…. “It will take away funding for contraception, maternal care and the safe delivery of babies, as well as programmes to counter gender-based violence.”
Both Jane and Hadley should have first spoken to disabled women before they use the concept of choice for women as the two examples show and reaffirms what our women feel that these are not Women but Disability Issues where Feminism is in conflict.
“I and not ill, we al have different abilities and strengths ..."I have the right to live." - Charlotte Helene Fien has Down's Syndrome and Autism. A 21 year old’s address to the United Nations
Having families struggle should not happen in a modern civilization .its a sick deliberate plot for further alienation and supports Eugenics As such DISABLED LIBERATION AOTEAROA NZ also endorse thee IPPF Director General Rewords Melissa “We should be clear. None of the funding being withdrawn by the US administration is spent in the provision of abortion or in support of coercive reproductive policies. This is a smokescreen for cuts in funding, nothing more.”
A Medicalization of Disability and subsequently, Society is a frightening backward step that historically leads to further world wars. A World without Downs looked sterile and scary. As Francis Ryan writes “Phillips is right that the subject needs raising because the way a pregnant woman is spoken to about a Down’s diagnosis undeniably needs to change. “I expected tragedy and got comedy,” is how she puts it. A long list of potential health problems, as currently provided in NHS leaflets, isn’t enough to go on when you’re deciding whether or not to bring a life into the world.”
Alan Cameron, foetal medicine consultant at Queen Elizabeth Hospital in Glasgow. Made some comments that are in fact false. Similar sentiments towards Disabled / Hauaa within areas as Academia was identified decades ago by people and yet no one wanted to listen. “Screening has never been a case of "let's try and eradicate Down's syndrome from the population," says Cameron.”That's never been the mission... It was all on the back of women's choice. ….He admits, though, that while medics have long considered the ethics and consequences of screening among themselves, they haven't been very good at discussing this with their patients and the public… In the UK the new test is being developed by Lyn Chitty at Great Ormond Street Hospital - professor of genetics and foetal medicine. She carried out a study to see what women do when they are offered NIPT …."I really do not think that we are going to be screening out Down's syndrome," she says. "I find it quite distressing. I had a journalist phone me up and say 'You're going to annihilate Down's.' Well, I don't think that's going to happen…The trouble is everybody's looking at hypothetical scenarios, they're looking at 'what if' situations”
I think both Alan Cameron and Lyn Chitty should come clean about the long standing history because hypothetical is incorrect. The Journal of Medical Ethics article shows that even when babies are born, they are still vulnerable “A serious philosophical problem arises when the same conditions that would have justified abortion become known after birth. In such cases, we need to assess facts in order to decide whether the same arguments that apply to killing a human fetus can also be consistently applied to killing a newborn human… Such an issue arises, for example, when an abnormality has not been detected during pregnancy or occurs during delivery” (Alberto Giubilini / Francesca Minerca 2011)
Retired GP Owen Lister deputy mayor has sparked outrage by calling for disabled kids to be guillotined to avoid wasting cash on their care. He goes on to justify the comment “"I indicated at that point that perhaps the guillotine might be better. These are children you can't educate” This is fake news and further reinforces the beast of burden theory, often used by Colonizing regimes including today, with economic driven arguments through identifying people as inanimate objects for scientific purposes "It's merely a matter of caring for them until they die. The only difference between a terminally ill patient and a severely handicapped child is time”
On the only good side to this Nazi eugenic attitude was it being identified by one of his colleagues Barrie Thompson, the committee's vice-chairman, likened Lister to one of Hitler's henchmen….He said: "The last time I heard remarks like that were from Heinrich Himmler."
If one was to look to a vision of what ‘inclusion’ means within The Social Model of Disability, then this would NOT be an exemplary example, in my view, In fact I recall this mum make mention the characteristic that seems to be forgotten…Personality, and as Disabled, part of a Cultural Characteristic required in all Collectives
Comments by Cameron himself seem to back up this “You've got to be given an educated choice, but certainly my experience is that much fewer women would terminate now than they ever did before because I think things are better… people see Down's kids having good, healthy, lives, working in the community, you see kids around with Down's syndrome that are doing a good job."
So why is it? In Iceland there is 100 per cent terminations using this method where extinction has reached a stage where they are taking portraits of those left “Since 2008, according the advocacy group Down Pride’s appeal to the United Nations, every Icelandic unborn child pre-natally diagnosed with Down syndrome has been aborted. So, since then, no babies with Down syndrome HAVE been born in Iceland—on purpose In response to this, Icelandic photographer Sigga Ella, who has an aunt with Down syndrome, produced a series of 21 portraits of people with Down syndrome called “First and Foremost I Am.”
.This is all too familiar with Maori here in Aotearoa or like Australia's real 1st People, or the Jews of Europe. 1st take away the income base (land skills etc); putting peoples in positions of State dependency, then they have the audacity to moan about the cost Talk of health costs are more a front. Disabled babies are not responsible for man made economic mismanagement. Illness or being unhealthy seems more to apply to mainstream able bodied and its profit driven motives at the expense of its own citizens, other than a selected few.
Hilary makes good sense when she writes “In more controversial areas, such as sex-selection abortion, the correct approach is to tackle the attitudes behind it, not ban abortion per se. Similarly, with Down’s syndrome screening what needs examining is the image around the syndrome and the way doctors discuss it, not the screening itself. It’s the attitudes, not the science, that’s the problem. Science is what gives women the choice.” Then I think she would learn a great deal from the likes of Freyja Haraldsdóttir, a disabled activist an MP from Iceland in 2016 when she said;
“A friend of mine told me recently that a women active in the feminist movement had complained about disabled women not understanding that ableism and sexism were separate issues to tackle in different spaces. I was speechless. Disabled women cannot pull themselves apart that sometimes they are only women and sometimes they are only disabled just to fit some structure of disability and feminist movements that somebody else lacking your experience makes. As a feminist disability activist, I realized that I could not only fight for a part of my group and leave someone out, for example people with intellectual impairment, because we are not “we” and “them.” We are “us” together. We are far from being all the same, but we do share the experience of being marginalized and excluded in a way that makes every step towards power over our bodies, our lives, a hard one. As Kimberly Williams Granshaw, an American scholar in the field of critical race theory and a professor, said, “When we don’t pay attention to the margins, when we don’t acknowledge that intersection, when the places of power overlap, we not only fail to see the women who fall between our movements, we sometimes repeat our movements against each other.” I know it’s’ not always going to be easy, and we’re going to have difficult discussions, but it’s not going to be harder than all of us being more or less powerless. It would still be the case if we approached gender equality as a singular struggle. We need each other, not only to demand space and power but to take it. Nobody is going to give it to us. I, like Audre Lorde, a Black, queer feminist activist with a visual impairment, believe that we can pass through that by admitting, respecting and celebrating that women, as she phrased it, don’t live in secrecy lives” .
Otherwise look at a picture like the movie The Thinning, listed on Wikipedia as a Science Fiction, yet it might well be Futuristic “In the year 2041, Earth's resources are nearly depleted by overpopulation, so the UN declares that all nations must cut their population by 5% each year. While some countries remove their elderly and others enforce a one-child policy, in the United States, the answer is 10-241, or more commonly known as the Thinning, a standardized test taken from first grade to twelfth grade. Those who pass continue to the next grade while those who fail are executed."..
In conclusion, it is customary to end with a Waiata song ‘Blood of Eden' Peter Gabriel...Their grip are surely slipping. I think they've lost their hold...They can not get insurance any more...Won't take Credit only Gold...In the Blood of Eden
The Guardian “A World Without Down’s Syndrome? review – straight from the heart, and that’s the problem” https://www.theguardian.com/tv-and-radio/2016/oct/06/world-without-downs-syndrome-review-straight-from-heart-problem
Sorry, Sally Phillips, but a woman should be able to know if her unborn baby has Down’s syndrome '' by Hadley Freeman https://www.theguardian.com/…/sally-phillips-woman-unborn-b…
Read more Daily Mail Australia at: http://www.dailymail.co.uk/news/article-3818823/Row-actress-accused-making-mums-feel-guilty-s-Sally-Phillips-criticised-using-disabled-son-make-abortion-dilemma-harder.html#ixzz4eNDxNrEY
“Life at any price... Are El Salvador's abortion laws endangering some women's lives while putting others behind bars?” Aljazeera People in Power 2017 http://www.aljazeera.com/programmes/peopleandpower/2013/08/2013841542313541.html
Aljazeera News “Polish doctors hide pregnancy risks to limit abortions” December 2016 http://www.aljazeera.com/news/2016/12/poland-abortions-161227105318700.html
6 CBS News “Trump expands anti-abortion ban to all U.S. global health aid” 2017
NZ Family Planning 2017 “IPPF reacts to US Government withdrawal of UNFPA funding”
via FACEBOOK DLANZ 2017
Francis Ryan The Guardian TV Review 2017 “A World Without Down’s Syndrome? review – straight from the heart, and that’s the problem” https://www.theguardian.com/tv-and-radio/2016/oct/06/world-without-downs-syndrome-review-straight-from-heart-problem
“A world without Down's syndrome?” By Alison Gee BBC News Magazine http://www.bbc.com/news/magazine-37500189
After-birth abortion: why should the baby live?
Free BMJ Journal of Medical Ethics 2011 http://jme.bmj.com/content/39/5/261
The Daily Mirror 2005 “Tory deputy mayor: Best thing for disabled children is the guillotine” http://www.mirror.co.uk/news/uk-news/tory-deputy-mayor-owen-lister-558677
Jenny Rapson Thanks to Screening and Abortion, We Are Heading Toward a ‘Down Syndrome-Free World’ FOR EVERY MOM...a Christian based outfit http://foreverymom.com/family-parenting/thanks-to-screening-and-abortion-no-babies-with-down-syndrome-are-born-in-iceland/
Freyja Haraldsdóttir Speaks on Multiple Marginalization Introduction In 2016, Icelandic Member of Parliament Freyja Haraldsdóttir spoke on a panel to celebrate the one hundred year anniversary of women's suffrage in Iceland and to discuss better methods for engaging women in political life. The transcript of her speech begins below. Election Access http://www.electionaccess.org/en/media/videos/406/